Thursday, December 6, 2012

PT, Drs appts & waiting...

I have always wanted to blog about Carter's medical journey but don't want to ever seem like I am complaining or trying to get sympathy. I regret not blogging about it the last 3.5 years as I would love for him to have it when he gets older to see what he went through as a baby and toddler. I am going to attempt starting now.

Last Thursday was like a slap in the face. As usual I packed the boys up for our weekly Thursday afternoon PT appt. We go in Carter chats with EVERYONE and acts like he own's the place, lol. He then goes back to the "big" PT room to walk on the treadmill while Cohen and I wait until we can go in. This is definitely becoming a challenge having Cohen in the waiting room with me and him not being able to get down. I bring a bottle, toys, etc. By the end of therapy he has HAD it, lol.

I then was called back to watch the end of Carter's PT session. At that point his physical therapist said that she has noticed a weakness in Carter's left side.(this used to be his strongest side). She stated that he was having difficulty climbing the stairs and could not come down them at all. He also seemed to be in a plateau and had not been improving in several weeks.

As you can imagine, my heart sunk! It has been so long since we have had set backs and I was not expecting to hear any of this. She then stated that she thought that he had reached him max potential for his life and muscles, that she didn't think he would be able to stand on his own or use is hand crutches for anything more than at home just a few feet. As she is saying all of this Cohen is crying wanting down and I am trying to chase Carter around the PT room so that he doesn't hurt himself on the equipment. Tears start streaming. "What do you mean this is IT?!?!"

I was confused, heart broken, sad, mad! Never had someone told us this is just it. Webb was in class and I wasn't going to call and tell him over the phone. I called my best friend Bridgette. Sobbed the whole way to sonic to get Carter his tater tots and special blue drink(he could have asked for the moon that night and I would have gotten it for him). After leaving sonic I collected myself and my thoughts. Bridgette surprised me with a delightful chocolate peppermint milkshake from Chic Fil a and my mom surprised me and came over. I LOVE THEM!!

When Webb got home I explained everything to him, as you can imagine he was NOT happy. He immediately thought something Neuro is going on. Could it possibly be beginnings of a Shunt Malfunction, Syrinx flare up, Tethered cord, etc. Ummm. why didn't I think about that? HELLO Courtney!! So first thing friday I called and scheduled an appt with Dr. Boop(Carter's Neurosurgeon).
Tuesday we saw Dr. Boop- Carter will be scheduled for a brain and full spinal MRI with sedation. It has been around 2 years since his last one. I am PRAYING for nothing serious that requires surgery, but also hoping for answers. His weakness is not enough that we even noticed it and to be honest he has been doing sooo great climbing, jumping in his walker, etc. But I also know that in the past he has had so many shunt problems and everyone of them had different symptoms.

I am nervous, scared, anxious and hopeful!! and Carter is going to keep moving mountains and prove everyone wrong!! He is the most determined little boy and has a HUGE drive. No one will tell him what he can and can't do!!
Keep pushing on sweet boy!!
I will update more when we have answers!!

Wednesday, December 5, 2012

Baby Cohen is 9 months!!

I can NOT believe that my baby boy is 9 months old. We went to see Dr. Hanson yesterday and stats are Length- 27.25(18%), Weight- 18lbs3oz(16%), and Head Circ- 45.5cm(59%). 
He is such a busy little body with such an enormous personality. He is almost totally on table foods right now. He LOVES all carbs and fruits and most veggies. He has two little bottom teeth and no view in sight of any top yet. 
He sleeps from about 7-5 then takes a bottle and goes back to sleep until around 7:30. He is now saying Mama, which started a couple of weeks ago and just two nights ago said Dada. He also LOVES his big brother and Carter is a little obsessed with him. I could sit all day and watch them play together!! He is also getting more independent and is starting to really play by himself which is nice for me to be able to get a few things done around the house!
and he LOVES his Mama!! This little man would be 100% happy to never be put down and I can't get enough of him!! I am so blessed with this little man and am enjoying staying home and watching him grow and change everyday!!! Love you little stinker!

Its beginning to look a lot like Christmas!!

We put up the Christmas tree early this year. I LOVE this time of year and seeing all the decorations and how excited Carter gets makes me more excited this Christmas than ever!! Here are a few photos just playing in the living room the other day. These boys are growing sooo fast!
Cutie Patootie!
Gosh I LOVE his little round face and fat cheeks. nom nom
Haha this one cracks me up. If you know our Cohen, than you know this is sooo him! 

And our sweet little soul Carter
There will be MANY more Christmas photos to come!

Tuesday, December 4, 2012

October Overload :

October was a busy and fun month!! Well I decided to go crazy and start a photography business in the busiest time of the year(which is why I am so behind on my own blog)! We also decided to take a FUN trip to Nashville. Webb had to go on a business trip, so the boys and I stayed with my Bestie Tiffany and her crew for the week. SOO much fun and so thankful to be able to spend time with them!!
Here are a few photos from our trip!
 CUTIE Levi!
 Gosh How beautiful and so big miss Presley has gotten!
 It is also Spina Bifida awareness month!
 LOVE these boys SOOOOO much!
 My little pumpkin
 Can't believe they are mine!
 Our crazy crew
 Just got my new 35L in and everyone was napping so I took pics of our first baby Ginger. Hard to think she is 10 this month.
 Starting to crawl, look out world!
 little monkey
 LOVES, LOVES, LOVES his trains
 Priddy Farm Pumpkin Patch fun! So many more to edit and share from this day!
 Happy Halloween to my little dinos!
My sweet Friend Amanda from my photo boards little girl was diagnosed with a brain tumor this month. We took this photo for a photo book that was made for her and Sweet Reesey!! Will never stop Believing, Hoping and Praying for Reese and the Skelte family!! 

Playing catch up- September!!!

I am WAY overdue with a blog post so this post is going to be mostly photos to catch up until now, so that maybe I will start being better about updating!!
Visiting Mamaw- She loves her sweet boys and I am so thankful for her and to have these photos and memories!!! 
 Nana and Cohen
 Playing at the park on beautiful days
 Cohen has just started sitting up and he and Carter are starting to play- MELTS ME!!
 another day at the park- my boys and I LOVE being outside!!